Share Your Story
Everyone’s lupus journey is different, and every story has the power to make someone feel less alone.
Living with lupus can be challenging, but sharing your experiences can inspire hope, raise awareness, and help others feel seen and understood.
Whether you’ve been newly diagnosed, have lived with lupus for decades, support someone you love, or have a unique perspective to share, we’d love to hear from you.
Through Let’s Talk Lupus: Conversations with Macenzie, we feature real stories from Canadians affected by lupus because every voice helps build a stronger, more connected community.
Meet Macenzie
Each month, Toronto-based journalist and writer Macenzie interviews Canadians living with lupus to share authentic stories of resilience, challenge, and hope.
Diagnosed with Systemic Lupus Erythematosus (SLE) in 2017, Macenzie understands firsthand the uncertainty, resilience, and strength that come with living with lupus.
Through thoughtful conversations, she helps amplify voices from across Canada while increasing awareness and understanding of lupus.
“Demystifying the misconceptions around lupus and non-visible illnesses is incredibly important, especially to those of us in the community who have experienced feelings of loneliness and hopelessness. Sharing our stories is a reminder that ‘You are not alone.’ Our community may be small, but it is resilient despite the challenges we face every day.”
— Macenzie
Why We Share Stories
Living with lupus often means navigating invisible symptoms, unexpected challenges, and moments that others may not fully understand.
Stories have the power to change that.
By sharing your experiences, you can:
- Help someone feel less alone.
- Raise awareness about the realities of lupus.
- Challenge misconceptions about invisible illness.
- Inspire hope for those who are newly diagnosed.
- Advocate for better understanding and support across Canada.
Every story matters.
What to Expect
Sharing your story is simple.
1. Complete the interest form below.
Tell us a little about yourself and your lupus journey.
2. We’ll review your submission.
Our team will reach out if your story is a good fit for an upcoming feature.
3. Meet with Macenzie.
Interviews are relaxed, conversational Zoom calls that usually last about 30–60 minutes.
4. Review your story.
Before anything is published, you’ll have the opportunity to review your story and request any edits.
Our goal is to create an authentic conversation that reflects your experience in your own words.
Other Ways to Get Involved
There are many ways to make a difference beyond sharing your story.
Learn About Lupus
Explore educational resources about lupus, symptoms, diagnosis, treatment, and living well.
Support Lupus Research
Help advance research, advocacy, education, and support programs for Canadians affected by lupus.
Volunteer or Advocate
Join our community of volunteers and advocates working to improve the lives of people living with lupus.