Empower Your Journey

Reaching out is the first step.

Discover empowerment through Lupus Canada’s Self-Help resources, designed to support your lupus journey with essential tools and information. Our resources connect you with peer support networks and mental health assistance across Canada, enhancing your quality of life. Explore these tools to navigate the challenges of lupus, knowing you’re supported every step of the way.

Provincial Resources

British Columbia

The Self-Help Resource Association of British Columbia

Saskatchewan

Saskatchewan Self-Help Network

Quebec

Information & Referral Centre of Greater Montreal Foundation

Quebec

Centre d’Action Benevol du Quebec

Quebec

CAP Sante Outaouais

Nova Scotia

Self-Help Connection Nova Scotia

All Provinces

Canadian Mental Health Association

Online Support Groups

With the impact of COVID, in-person support group meetings have been transitioned to online support group meetings. Both the BC Lupus Society and Lupus Ontario offer online support groups for anyone to join. Lupus Canada is happy to share with you the links to the BC Lupus Society and Lupus Ontario support group meeting information below.

British Columbia

BC Lupus Society Online Support Group Information
Ontario
Lupus Ontario Online Support Group Information
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MyLupusGuide

Use Access Code: lupuscanada

MyLupusGuide (MLG) is the first interactive website developed specifically for people with lupus. This website provides free access to reliable information for all ages and stages of lupus. Comprehensive in its scope, MLG provides a wide variety of information about lupus and also addresses important lupus-related issues, including pregnancy, dealing with work, explaining lupus to family and friends and much more.

MLG promotes self-management and offers management strategies to help cope with lupus and manage symptoms, side effects, and emotional hurdles.

MLG also features videos of healthcare providers and patients describing their experiences with lupus and a support resources locator; just enter your postal code and search for resources near you.

Research Publications for MLG

A major challenge for people living with lupus is coping with their illness and complex care. MLG provides much needed informational resources for people with lupus, and their families, friends and health professionals.

Learn more about the importance of accessible engagement and self-management for persons with lupus by reading the scientific studies below.

The needs of persons with lupus and health care providers: a qualitative study aimed toward the development of the Lupus Interactive Navigator™

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Toward the development of a Lupus Interactive Navigator to facilitate patients and their health care providers in the management of lupus: results of web-based surveys.
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Development of the Lupus Interactive Navigator as an empowering web-based ehealth tool to facilitate lupus management: users perspectives on usability and acceptability.
  • Neville, C., De Costa, D., Rochon, M., Peschken, C., Pineau, C., Bernatsky, S., Keeling, S., Avina-Zubieta, Lye, E., J., Eng, D., Fortin, P. (2016). Development of the Lupus Interactive Navigator as an empowering web-based ehealth tool to facilitate lupus management: users perspectives on usability and acceptability. JMIR Research Protocol. 5(5): e44.

    Click Here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4906236/

Personal Stories

These articles and information are available from the
Everything Lupus: Resource Hub.