Impact on Canadian Lupus Research
Welcome to Lupus Canada’s Spotlight on Canadian Lupus Research, a dedicated space where we shine a light on the groundbreaking work being done in the field of lupus research. Here, you will have access to the latest research material. Join us in exploring the advancements and insights that are shaping the future of lupus care and treatment in Canada and beyond.
Lupus Canada’s Role in Research
In addition to sharing Canadian lupus research, Lupus Canada collaborates with researchers, clinicians, and patient partners to help ensure lived experience informs research priorities, study design, and knowledge translation. In some cases, this involvement is reflected through patient engagement contributions or co-authorship on peer-reviewed studies.
New Canadian Lupus Research Reveals Awareness and Information Gaps
A Canadian research project supported by Lupus Canada examined how Canadians search for lupus related information online and identified ongoing awareness and information gaps across the country.
Using Google Trends data from 2004 to 2024, researchers explored public interest in lupus over time, regional differences in search behaviour, and the topics Canadians most frequently searched for, including symptoms, diagnosis, treatment, and disease management.
The findings highlight important opportunities to improve lupus awareness, patient education, advocacy, and access to information across Canada.
Study: Investigating Canadians’ Information Needs Related to Lupus: A Google Trends Analysis of Online Search Query Data
Researchers: Emily Shantz, Taylor Williamson, Susan Elliott, Christine Sperling, and May Choi
Patient Perspectives on Clinical Trial Participation in Lupus
Peer-reviewed focus group study examining patient perspectives on participation in clinical trials for novel and advanced lupus therapies.
Patient engagement and co-authorship
Published in Rheumatology International (2026)
Spotlight: When patient-research collaboration leads to discovery.
Current Canadian Lupus Research
These articles and information are available from the
Everything Lupus: Resource Hub.
New Canadian Lupus Research Reveals Awareness and Information Gaps | Lupus Canada
ReadShingles Vaccination in Lupus: Catalyst Grant Research Study
ReadLet’s Talk Lupus: A Pathway to Progress | Global Lupus Research and Expert Insights
ReadBiologics in Lupus Pregnancy | BIONIC Study Canada (CIHR-Funded Research)
ReadParticipate in a Lupus Research Study in Canada | Lupus Canada & the PROxy Network (PeriPharm Inc.)
ReadCanadian Network for Improved Outcomes in Systemic Lupus Erythematosus (CaNIOS)
The Canadian Network for Improved Outcomes in Systemic Lupus Erythematosus (CaNIOS) is a Canadian national research group on Systemic Lupus Erythematosus (SLE).
It is the place that unites all centres, all medical doctors, principle investigators and researchers under CaNIOS to exchange information. CaNIOS wants to hear from you concerning your thoughts, questions and suggestions about the organization and the research.
You can support their research by participating in our studies and/or by making donations and getting involved.
