Living with Lupus: Samantha S.’s Story

Dancing Through Lupus, Blood Clots, and Medical Dismissal Let’s Talk Lupus: Conversations with Macenzie — Real stories from Canadians living with lupus. Professional dancer Samantha was no stranger to sore muscles and aching joints. As a high school student deeply...

Living with Lupus: Magdalena S.’s Story

Magdalena S.’s Lupus Journey: Finding Balance, Strength, and Perspective Let’s Talk Lupus: Conversations with Macenzie — Real stories from Canadians living with lupus. For 44-year-old Magdalena Sobczak, lupus has been a part of her life for as long as she can...

Living with Lupus: Shabnam Jessa’s Story

Shabnam Jessa’s Journey with Lupus: Choosing Joy Through Resilience Let’s Talk Lupus: Conversations with Macenzie — Real stories from Canadians living with lupus. During the ups and downs of her second pregnancy, Shabnam (Shab) Jessa of Vancouver, B.C., believed she...

Living with Lupus: Laura Louis’ Story of Resilience

Laura’s Journey of Resilience with Lupus One day, back in October 2014, Laura Louis of Abbotsford, B.C., got out of her relaxing evening bath and noticed that her chest appeared to be miscolored. In her late 30s, Laura initially dismissed the purple discoloration of...

Lupus and Mental Health | Patient Stories

Sick, Misunderstood, and Dismissed: How Lupus Impacts Our Bodies and Mental Health There has been one sentence consistently repeated to me throughout my years working, writing and conducting interviews with those who have lupus.  “Doctors told me it was in my head.” ...