From May 1st to May 10th, 2025, Canadians across the country took part in the Lupus 1000 Challenge to raise awareness and critical funds for lupus research.
Although Lupus Awareness Month has come to a close, the championing of lupus patients persists. This year, with Lupus Canada and its Lupus 1000 Challenge, over $21,000 was raised to support vital lupus research.
In 2024, Lupus Canada proudly launched the 1000 Laps for Lupus Campaign, an initiative inspired by individuals living with lupus. Initially, Lupus Canada Youth Ambassador Isaac Hall, from Montreal, Quebec, wanted to bring awareness to lupus, and as a competitive swimmer, he felt 1000 Laps for Lupus was a great way to do so.
Then, to take the challenge a step further, Isaac, a Canadian National Swimmer from Montreal, Kate Nielson from Ottawa, and Yaneisy, a dedicated lupus advocate and researcher from Quebec City, all took on the challenge of swimming 1000 laps in 10 days. Together, they raised over $4000 to support lupus awareness and research.
This year, Lupus Canada took its vision even further with the Lupus 1000 Challenge to raise $10,000 to aid vital lupus research. The support from the community and the amount of participation blew Lupus Canada’s expectations out of the water. Leanne Mielczarek, Chief Executive Officer of Lupus Canada, had this to say about the overwhelming support this year.
“The Lupus 1000 campaign showed what’s possible when we invite the community to make something their own—and they truly did. With 34 participants and 13 teams, we set out with a $10,000 goal and more than doubled it. From creative challenges to personal milestones, each effort brought meaningful awareness to lupus and contributed to a stronger, more visible community. This is just the beginning; we can’t wait to see how the community builds on this momentum next year.”
Isaac, too, feels incredibly overwhelmed and proud of the amount of money raised for lupus research.
“I want to shed light on lupus because many people don’t realize how uniquely it affects each individual…By raising awareness, I hope to help others understand how complex and personal living with lupus really is and to continue pushing for research for the disease.”
This year’s challenge saw a wide range of participants, family members, friends, colleagues, and those with the disease all unite. The collective effort motivated others and pushed people outside of their comfort zones, explained Isaac.
“It also expanded the reach of lupus awareness beyond just me—through the visibility of each participant, their own support networks got involved too, which helped spread the message even further,” said Isaac.
Yaneisy, who was diagnosed with lupus at a young age, struggles with the invisible disease daily. She has dedicated her life to studying and researching lupus to understand it on a cellular level. For Yaniesy, it is her way of understanding the disease and turning her experience into a scientific purpose.
“This year was a success,” she said. “I reached new audiences who were not familiar with lupus, and many people approached me with genuine curiosity, asking questions and wanting to learn more.”
This kind of community engagement is incredibly meaningful to Yaniesy, both as a researcher and as someone living with lupus. This year surpassed her fundraising total from 2024.
“This shows a growing support for lupus awareness and research. But more than the numbers, I felt a deeper connection with my audience this time. Their encouragement and interest reminded me why advocacy is so important, and it’s made me even more motivated to continue bridging science and lived experience in everything I do.”
The support and participation for this year’s event were tremendous. Not only does it demonstrate the desire of people in the community to bring awareness, but proves they are not alone in the fight.
From May 1st to May 10th, 2025, participants across Canada took part in the Lupus 1000 Challenge by following these four simple steps:
1
Visited our Lupus 1000 Challenge page here to get started.
2
Individuals and teams created personal fundraising pages and began collecting donations between April 1st and May 31st, 2025.
3
Complete your goal. The challenge took place from May 1st to 10th, but participants could also engage throughout the month, completing their 1,000-unit challenge at their own pace.
4
Spread the word. Participants shared their stories, tracked their progress, and promoted lupus awareness by engaging their friends, family, and wider communities online.
The Lupus 1000 Challenge will return next May, and we invite you to start thinking now about how you can take part. Whether it’s your first time joining or you’re coming back for another round, your involvement helps drive change, raise visibility, and bring us closer to a life without lupus.
Are you ready to take on the Lupus 1000 Challenge?
Contact Heather Coates, National Fund Development and Engagement Officer, at heather.coates@lupuscanada.org for assistance or guidance.