{"id":11850,"date":"2026-01-28T20:12:51","date_gmt":"2026-01-28T20:12:51","guid":{"rendered":"https:\/\/www.lupuscanada.org\/vivre-avec-le-lupus-lhistoire-de-samantha-s\/"},"modified":"2026-01-29T17:53:53","modified_gmt":"2026-01-29T17:53:53","slug":"vivre-avec-le-lupus-lhistoire-de-samantha-s","status":"publish","type":"post","link":"https:\/\/www.lupuscanada.org\/fr\/vivre-avec-le-lupus-lhistoire-de-samantha-s\/","title":{"rendered":"Vivre avec le lupus : l\u2019histoire de Samantha S."},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||1px|||\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb36px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_heading title=\u00a0\u00bbDanser \u00e0 travers le lupus, les caillots sanguins et l\u2019expulsion m\u00e9dicale\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_level=\u00a0\u00bbh2&Prime; title_text_color=\u00a0\u00bb#6B198A\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb title_font_size=\u00a0\u00bb24px\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;][\/et_pb_heading][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><em>Parlons lupus : Conversations avec Macenzie \u2014 Histoires vraies de Canadiens vivant avec le lupus.<\/em><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2026\/01\/DSC_1758-scaled.jpg\u00a0\u00bb alt=\u00a0\u00bbPortrait de Samantha S., partageant son exp\u00e9rience de vie avec le lupus\u00a0\u00bb title_text=\u00a0\u00bbVivre avec le lupus : Samantha S.\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb height=\u00a0\u00bb455px\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb8px||||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p data-start=\"526\" data-end=\"857\">La danseuse professionnelle Samantha n\u2019\u00e9tait pas \u00e9trang\u00e8re aux muscles endoloris et aux articulations endolories. En tant qu\u2019\u00e9l\u00e8ve de lyc\u00e9e profond\u00e9ment plong\u00e9e dans la danse comp\u00e9titive, la douleur physique \u00e9tait quelque chose qu\u2019elle avait appris \u00e0 surmonter. Mais quand un mal de t\u00eate lancinant et incessant refusait de s\u2019att\u00e9nuer malgr\u00e9 les doses r\u00e9p\u00e9t\u00e9es de Tylenol, Samantha sut que quelque chose n\u2019allait pas.  <\/p>\n<p data-start=\"859\" data-end=\"1025\">Lorsqu\u2019elle s\u2019est inscrite aux urgences de son h\u00f4pital local \u00e0 London, en Ontario, elle a \u00e9t\u00e9 maintes fois qualifi\u00e9e d\u2019adolescente lunatique exag\u00e9rant ses sympt\u00f4mes.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb24px||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb||2px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p>\u00ab J\u2019allais sans cesse aux urgences \u00bb, dit Samantha. \u00ab Et ils n\u2019arr\u00eataient pas de me dire que j\u2019\u00e9tais d\u00e9prim\u00e9, ou que c\u2019\u00e9tait \u00e0 cause des hormones parce que j\u2019avais 15 ans. \u00bb <\/p>\n<h2>Quand la douleur n\u2019est pas prise au s\u00e9rieux<\/h2>\n<p>Jour apr\u00e8s jour, les maux de t\u00eate de Samantha s\u2019intensifiaient jusqu\u2019\u00e0 ce que sa vie s\u2019arr\u00eate compl\u00e8tement. Elle ne pouvait plus aller \u00e0 l\u2019\u00e9cole, encore moins danser. Elle se retrouvait \u00e0 visiter l\u2019h\u00f4pital presque tous les jours, \u00e9valuant syst\u00e9matiquement sa douleur \u00e0 10 sur 10.  <\/p>\n<p data-start=\"1444\" data-end=\"1540\">\u00ab On m\u2019a dit que ma douleur ne pouvait pas \u00eatre un 10 \u00e0 chaque fois \u00bb, se souvient-elle. \u00ab Ils ont dit que j\u2019exag\u00e9rais. \u00bb <\/p>\n<p data-start=\"1542\" data-end=\"1674\">Sa m\u00e8re plaidait farouchement en sa faveur, rappelant aux m\u00e9decins que la gravit\u00e9 de la douleur de Samantha \u00e9tait pr\u00e9cis\u00e9ment la raison de leur pr\u00e9sence.<\/p>\n<p data-start=\"1676\" data-end=\"1886\">Comme elle \u00e9tait adolescente, les m\u00e9decins urgentistes refusaient de prescrire une IRM, malgr\u00e9 ses plaintes r\u00e9p\u00e9t\u00e9es concernant une forte pression \u00e0 la t\u00eate. Au lieu de cela, Samantha a \u00e9t\u00e9 renvoy\u00e9e chez elle et on lui a dit qu\u2019elle avait un \u00ab mal de t\u00eate induit par le Tylenol \u00bb. <\/p>\n<p data-start=\"1888\" data-end=\"1980\">Pour Samantha, cette p\u00e9riode a \u00e9t\u00e9 d\u00e9vastatrice. La danse n\u2019\u00e9tait pas qu\u2019un passe-temps \u2014 c\u2019\u00e9tait son identit\u00e9. <\/p>\n<p data-start=\"1982\" data-end=\"2126\">\u00ab Je voulais juste savoir danser \u00bb, dit-elle. \u00ab J\u2019avais l\u2019impression de d\u00e9cevoir mon \u00e9quipe parce que j\u2019avais tellement mal \u00e0 la t\u00eate que je ne pouvais rien faire. \u00bb <\/p>\n<h2 data-start=\"1982\" data-end=\"2126\">Diagnostic mettant la vie en danger<\/h2>\n<p data-start=\"1982\" data-end=\"2126\">Lors d\u2019une visite ult\u00e9rieure \u00e0 l\u2019h\u00f4pital, une annulation d\u2019IRM de derni\u00e8re minute a permis \u00e0 Samantha de passer enfin un scanner.<\/p>\n<p data-start=\"2281\" data-end=\"2369\">\u00ab Quand le m\u00e9decin est arriv\u00e9 les larmes aux yeux, je me suis dit : &lsquo;Oh non \u2014 que se passe-t-il ?&rsquo; \u00bb<\/p>\n<p data-start=\"2371\" data-end=\"2532\">Le scanner a r\u00e9v\u00e9l\u00e9 un gros caillot sanguin dans son cerveau \u2014 quelque chose qui aurait pu \u00eatre d\u00e9tect\u00e9 bien plus t\u00f4t si ses sympt\u00f4mes avaient \u00e9t\u00e9 pris au s\u00e9rieux d\u00e8s le d\u00e9part.<\/p>\n<p data-start=\"2534\" data-end=\"2637\">\u00ab Je ne r\u00e9alisais pas \u00e0 quel point c\u2019\u00e9tait un gros probl\u00e8me \u00bb, dit Samantha. \u00ab J\u2019\u00e9tais juste soulag\u00e9 qu\u2019ils aient trouv\u00e9 quelque chose. \u00bb <\/p>\n<p data-start=\"2639\" data-end=\"2773\">Elle a imm\u00e9diatement \u00e9t\u00e9 prescrite sous anticoagulants et est retourn\u00e9e \u00e0 l\u2019\u00e9cole quelques jours plus tard, tandis que les m\u00e9decins continuaient \u00e0 surveiller son \u00e9tat.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_divider color=\u00a0\u00bb#6B198A\u00a0\u00bb divider_weight=\u00a0\u00bb5px\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb23px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb15px||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb]<\/p>\n<h2 data-start=\"2780\" data-end=\"2827\">Chirurgie d\u2019urgence et retour sur sc\u00e8ne<\/h2>\n<p data-start=\"2829\" data-end=\"3102\">Juste au moment o\u00f9 les choses commen\u00e7aient \u00e0 se stabiliser, Samantha s\u2019est effondr\u00e9e \u00e0 l\u2019\u00e9cole apr\u00e8s avoir subi une forte pression \u00e0 la t\u00eate, une vision en tunnel et une perte d\u2019\u00e9quilibre. Elle a \u00e9t\u00e9 ramen\u00e9e d\u2019urgence \u00e0 l\u2019h\u00f4pital, o\u00f9 elle a subi une op\u00e9ration c\u00e9r\u00e9brale d\u2019urgence et a re\u00e7u une insertion d\u2019un shunt ventriculop\u00e9riton\u00e9al (VP). <\/p>\n<p data-start=\"3104\" data-end=\"3153\">Apr\u00e8s l\u2019op\u00e9ration, les maux de t\u00eate ont enfin cess\u00e9.<\/p>\n<p data-start=\"3155\" data-end=\"3270\">Contre toute attente, Samantha est revenue \u00e0 la danse comp\u00e9titive seulement trois semaines plus tard, apr\u00e8s avoir \u00e9t\u00e9 autoris\u00e9e par ses m\u00e9decins.<\/p>\n<p data-start=\"3272\" data-end=\"3364\">\u00ab J\u2019ai remport\u00e9 la troisi\u00e8me place au classement g\u00e9n\u00e9ral de toute la comp\u00e9tition \u00bb, dit-elle. \u00ab C\u2019\u00e9tait vraiment important pour moi. \u00bb <\/p>\n<p data-start=\"3366\" data-end=\"3443\">Mais seulement quelques semaines plus tard, les maux de t\u00eate sont revenus \u2014 ainsi qu\u2019un autre caillot sanguin.<\/p>\n<p data-start=\"3445\" data-end=\"3690\">Les m\u00e9decins pensaient initialement qu\u2019il s\u2019agissait d\u2019une complication rare apr\u00e8s une op\u00e9ration. Cependant, \u00e0 17 ans, Samantha a \u00e9t\u00e9 orient\u00e9e vers l\u2019H\u00f4pital pour enfants malades (SickKids) \u00e0 Toronto, o\u00f9 des sp\u00e9cialistes ont commenc\u00e9 \u00e0 la tester pour des maladies auto-immunes. <\/p>\n<p data-start=\"3692\" data-end=\"3733\">Pour la premi\u00e8re fois, Samantha ressentit un soulagement.<\/p>\n<p data-start=\"3735\" data-end=\"3779\">\u00ab Enfin, les m\u00e9decins me prenaient au s\u00e9rieux. \u00bb<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb]<\/p>\n<h2 data-start=\"2780\" data-end=\"2827\"><span>Vivre avec le lupus<\/span><\/h2>\n<p data-start=\"2829\" data-end=\"3102\"><span>Peu de temps apr\u00e8s, Samantha a \u00e9t\u00e9 diagnostiqu\u00e9e avec un lupus \u2014 une maladie dont elle n\u2019avait jamais entendu parler.<\/span><\/p>\n<p>[\/et_pb_text][et_pb_testimonial _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb35px||48px||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<p><span>\u00ab C\u2019\u00e9tait la validation dont j\u2019avais besoin \u00bb, dit-elle. \u00ab Je n\u2019avais pas des caillots sanguins au hasard. Mais j\u2019ai aussi r\u00e9alis\u00e9 \u00e0 quel point c\u2019\u00e9tait grave \u2014 <strong>que cela pouvait \u00eatre fatal.<\/strong> \u00bb  <\/span><\/p>\n<p>[\/et_pb_testimonial][et_pb_divider color=\u00a0\u00bb#6B198A\u00a0\u00bb divider_weight=\u00a0\u00bb5px\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb19px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb15px||15px||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; background_enable_image=\u00a0\u00bboff\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<h2 data-start=\"4531\" data-end=\"4574\">Choisir la passion malgr\u00e9 une maladie chronique<strong><span style=\"color: #ffffff;\"><\/span><\/strong><\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb]<\/p>\n<p data-start=\"4576\" data-end=\"4749\">En tant que professeure de danse et chor\u00e9graphe, Samantha a appris \u00e0 aborder le mouvement diff\u00e9remment, en se faisant preuve de gr\u00e2ce \u2014 notamment en ce qui concerne la capacit\u00e9 pulmonaire et la fatigue.<\/p>\n<p data-start=\"4751\" data-end=\"4873\">\u00ab Mon lupus est plut\u00f4t contr\u00f4l\u00e9 jusqu\u2019\u00e0 ce qu\u2019il ne le soit plus \u00bb, dit-elle. \u00ab Mais je danse encore autant que je peux. C\u2019est la seule chose que j\u2019aime. \u00bb <\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb15px||15px||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb column_structure=\u00a0\u00bb1_2,1_2&Prime; sticky_enabled=\u00a0\u00bb0&Prime; background_enable_image=\u00a0\u00bboff\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_2_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb22px\u00a0\u00bb]<\/p>\n<p data-start=\"4875\" data-end=\"5028\">Travaillant en \u00e9troite collaboration avec de jeunes enfants, Samantha utilise son exp\u00e9rience pour leur enseigner l\u2019importance d\u2019\u00e9couter leur corps et d\u2019appr\u00e9cier chaque instant.<\/p>\n<p data-start=\"5030\" data-end=\"5108\">\u00ab On ne sait jamais quand on pourra refaire \u00e7a \u00bb, dit-elle \u00e0 ses \u00e9l\u00e8ves.<\/p>\n<p data-start=\"5110\" data-end=\"5204\">Son message est simple mais puissant \u2014 et elle esp\u00e8re continuer \u00e0 le partager en 2026 et au-del\u00e0 :<\/p>\n<p data-start=\"5206\" data-end=\"5267\">\u00ab Je ne laisserai pas le lupus m\u2019emp\u00eacher de faire ce que j\u2019aime. \u00bb<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2026\/01\/44DC1D5F-F5AC-4E46-BD48-6BDA6D27402F.jpg\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb alt=\u00a0\u00bbSamantha S. dansant en costume violet, repr\u00e9sentant son parcours de vie avec le lupus\u00a0\u00bb title_text=\u00a0\u00bbVivre avec le lupus : Samantha S. Danse en violet\u00a0\u00bb custom_margin=\u00a0\u00bb-18px||||false|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; sticky_enabled=\u00a0\u00bb0&Prime;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.27.0&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2024\/08\/Custom-Gradient-1080&#215;1080@2x.png\u00a0\u00bb custom_margin=\u00a0\u00bb-14px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.3&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb30px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h5><span style=\"color: #ffffff;\"><strong>Parlons lupus : Conversations avec Macenzie<\/strong><\/span><\/h5>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2024\/08\/Custom-Gradient-1080&#215;1080@2x.png\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb|-4px||1px|false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><span style=\"color: #ffffff;\">Chaque mois, <em>Parlons lupus : Conversations avec Macenzie<\/em> vous pr\u00e9sente des histoires inspirantes de Canadiens atteints de lupus. \u00c0 travers ces entrevues, Macenzie, un journaliste et \u00e9crivain bas\u00e9 \u00e0 Toronto qui a re\u00e7u un diagnostic de lupus \u00e9ryth\u00e9mateux diss\u00e9min\u00e9 (LED) en 2017, met en lumi\u00e8re les exp\u00e9riences, les d\u00e9fis et les triomphes de ceux qui naviguent dans la vie avec le lupus. <\/span><\/p>\n<p><span style=\"color: #ffffff;\">Si vous souhaitez partager votre histoire, veuillez ariana.ranjbar@lupuscanada.org envoyer un courriel <strong><a rel=\"noopener\" style=\"color: #ffffff;\">.<\/a><\/strong><\/span><\/p>\n<p class=\"p1\">[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2025\/08\/IG-1080-x-1350-px-2-copy-1.png\u00a0\u00bb alt=\u00a0\u00bbPersonne aux cheveux noirs assise \u00e0 une table de pique-dans un parc verdoyant, reposant son menton sur une main et souriant \u00e0 la cam\u00e9ra.\u00a0\u00bb title_text=\u00a0\u00bbParlons lupus \u2014 Portrait ext\u00e9rieur\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_height=\u00a0\u00bb414px\u00a0\u00bb custom_margin=\u00a0\u00bb-19px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Samantha partage son parcours de vie avec le lupus, l\u2019exclusion m\u00e9dicale, des caillots sanguins et le choix de continuer \u00e0 danser tout en g\u00e9rant une maladie chronique.<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[92],"tags":[343,179,143,264,205,206,417],"topic":[118],"audience":[123,122,124],"class_list":["post-11850","post","type-post","status-publish","format-standard","hentry","category-article-fr","tag-histoires-de-lupus","tag-maladie-auto-immune","tag-maladie-chronique","tag-plaidoyer","tag-sensibilisation-au-lupus","tag-vivre-avec-le-lupus","tag-voix-du-patient","topic-recits-personnels","audience-j-ai-le-lupus","audience-j-ai-recemment-recu-un-diagnostic","audience-une-personne-a-qui-je-tiens-a-le-lupus"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts\/11850","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/comments?post=11850"}],"version-history":[{"count":0,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts\/11850\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/media?parent=11850"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/categories?post=11850"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/tags?post=11850"},{"taxonomy":"topic","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/topic?post=11850"},{"taxonomy":"audience","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/audience?post=11850"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}