{"id":10927,"date":"2025-08-26T20:39:19","date_gmt":"2025-08-26T20:39:19","guid":{"rendered":"https:\/\/www.lupuscanada.org\/vivre-avec-le-lupus-et-larthrite-lhistoire-de-la-resilience-de-megan\/"},"modified":"2025-08-27T17:55:46","modified_gmt":"2025-08-27T17:55:46","slug":"vivre-avec-le-lupus-et-larthrite-lhistoire-de-la-resilience-de-megan","status":"publish","type":"post","link":"https:\/\/www.lupuscanada.org\/fr\/vivre-avec-le-lupus-et-larthrite-lhistoire-de-la-resilience-de-megan\/","title":{"rendered":"Vivre avec le lupus et l\u2019arthrite : l\u2019histoire de la r\u00e9silience de Megan"},"content":{"rendered":"

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Septembre est <\/span>le Mois de la sensibilisation \u00e0 l\u2019arthrite<\/span><\/a>, qui pr\u00e9conise d\u2019intensifier la recherche et le financement des maladies. Semblable au lupus, l\u2019arthrite peut provoquer des douleurs articulaires, un gonflement et une raideur, affectant des personnes de tous sexes et de tous \u00e2ges. Et bien qu\u2019il soit rare d\u2019avoir les deux maladies, ce n\u2019est pas impossible. <\/span><\/p>\n

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La vie avec les deux affections est un d\u00e9fi pour des gens comme Megan Friedman, de Milton, en Ontario. Megan a re\u00e7u un diagnostic de PR et de lupus incomplet en 2017 \u00e0 l\u2019\u00e2ge de 29 ans. <\/span> Elle pr\u00e9sentait des sympt\u00f4mes de lupus, notamment des \u00e9ruptions cutan\u00e9es, de l\u2019urticaire et des plaies buccales. Apr\u00e8s des tests et des examens plus approfondis, elle a \u00e9t\u00e9 diagnostiqu\u00e9e avec une maladie du tissu conjonctif indiff\u00e9renci\u00e9 (UCTD), une condition qui reconna\u00eet qu\u2019un patient pr\u00e9sente des signes cliniques de lupus, mais ne r\u00e9pond pas aux crit\u00e8res de classification du LED, selon le <\/span>Biblioth\u00e8que nationale de m\u00e9decine<\/span><\/a>.<\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb2_5″ _builder_version=\u00a0\u00bb4.16″ _module_preset=\u00a0\u00bb73121f80-a3ef-4484-8763-c3f18e3c56d2″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2025\/08\/83279366-4A30-4614-9488-0343B9EAA735IMG_1824-scaled.jpg\u00a0\u00bb alt=\u00a0\u00bbMegan Friedman sourit \u00e0 l\u2019ext\u00e9rieur \u00e0 Milton, en Ontario, partageant son histoire de r\u00e9silience alors qu\u2019elle vivait avec le lupus et l\u2019arthrite.\u00a0\u00bb title_text=\u00a0\u00bbMegan Friedman : Vivre avec le lupus et l\u2019arthrite\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb width=\u00a0\u00bb100%\u00a0\u00bb custom_margin=\u00a0\u00bb|||-1px||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ 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\u00ab Le lupus incomplet \u00e9tait plus un diagnostic clinique pour moi \u00bb, dit-elle. \u00ab Alors que j\u2019ai \u00e9t\u00e9 diagnostiqu\u00e9 avec une PR apr\u00e8s une IRM et un gonflement visible de mes articulations. \u00bb <\/span><\/p>\n

L\u2019UCTD et la PR de Megan ont non seulement un impact diff\u00e9rent sur son corps, mais aussi sur sa vie.<\/span><\/span><\/p>\n

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L\u2019UCTD a un impact sur mon mode de vie. Je dois surveiller ma d\u00e9pense \u00e9nerg\u00e9tique, porter ma cr\u00e8me solaire, dormir beaucoup, bien manger, faire de l\u2019exercice, r\u00e9duire mon stress et \u00e9viter les temp\u00e9ratures extr\u00eames \u00bb, dit-elle. \u00ab Mais ma PR a un impact sur mes mouvements quotidiens. Je porte des appareils orthop\u00e9diques lorsque je fais de longues promenades. J\u2019\u00e9vite les mouvements ou le levage de charges lourdes qui fatiguent ou hyper\u00e9tendent les articulations. <\/span><\/p>\n

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Les deux affections de Megan sont g\u00e9r\u00e9es par un traitement biologique appel\u00e9 Actemra. Selon Megan, Actemra cible le marqueur inflammatoire de son syst\u00e8me immunitaire qui est \u00e0 l\u2019origine de sa ou ses maladies. <\/span><\/p>\n

\u00ab Je prends \u00e9galement des m\u00e9dicaments suppl\u00e9mentaires qui agissent comme des protecteurs articulaires et aident \u00e0 r\u00e9guler mon syst\u00e8me immunitaire. Les deux maladies \u00e9tant dues \u00e0 l\u2019inflammation, tous les plans de traitement sont interconnect\u00e9s.<\/span><\/p>\n

Avoir plusieurs diagnostics est un num\u00e9ro de jonglage pour Megan. Pour elle, il est essentiel de prendre les choses un jour \u00e0 la fois. Surtout parce que son corps est plus \u00e0 risque de pouss\u00e9es. <\/span><\/p>\n

\u00ab Vous ne pouvez pas s\u00e9parer les parties du corps et traiter chaque partie individuellement \u00bb, dit-elle. \u00ab Ces deux maladies sont inflammatoires et s\u2019influencent mutuellement. \u00bb <\/span><\/p>\n

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Elle r\u00e9it\u00e8re \u00e9galement qu\u2019il n\u2019existe pas d\u2019approche unique en mati\u00e8re de gestion des maladies. Aux yeux de Megan, chaque maladie est aussi unique que la personne touch\u00e9e. <\/span><\/strong><\/p>\n

\u00ab\u00a0Les gens croient que le lupus est une maladie rare. Mais cinq millions de personnes dans le monde s\u2019en sortent \u00bb, dit-elle. \u00ab Il existe \u00e9galement une id\u00e9e fausse selon laquelle l\u2019arthrite est une \u00ab maladie de personne \u00e2g\u00e9e \u00bb, alors que les gens sont diagnostiqu\u00e9s \u00e0 diff\u00e9rentes \u00e9tapes de la vie. \u00bb <\/span><\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb30px||30px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2025\/08\/127.png\u00a0\u00bb alt=\u00a0\u00bbMegan Friedman souriant avec son partenaire lors d\u2019un \u00e9v\u00e9nement officiel, toutes deux portant des lunettes de soleil.\u00a0\u00bb title_text=\u00a0\u00bbMegan Friedman avec son partenaire\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2025\/08\/126.png\u00a0\u00bb alt=\u00a0\u00bbMegan Friedman souriante \u00e0 l\u2019ext\u00e9rieur, v\u00eatue d\u2019une chemise arc-en-ciel et d\u2019un bandeau, lors d\u2019un \u00e9v\u00e9nement communautaire.\u00a0\u00bb title_text=\u00a0\u00bbMegan Friedman lors d\u2019un \u00e9v\u00e9nement communautaire\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bb5138c454-be54-4233-bd3b-f8e6a8747976″ custom_margin=\u00a0\u00bb0px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ 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<\/span>Megan est aux prises avec le handicap invisible d\u2019une maladie chronique. Ce n\u2019est pas parce qu\u2019elle est jeune et qu\u2019elle semble valide ou en bonne sant\u00e9 qu\u2019elle l\u2019est. <\/span><\/p>\n

\u00ab Les gens sautent rapidement aux conclusions concernant ma sant\u00e9 et la gravit\u00e9 de mes maladies ou le soutien auquel j\u2019ai le droit d\u2019acc\u00e9der en fonction de mon apparence. Parfois, je trouve ces jugements blessants et m\u00e9prisants de mes luttes. <\/span><\/p>\n

Les id\u00e9es fausses sur les maladies auto-immunes et chroniques font souvent en sorte que les personnes atteintes de maladies invisibles se sentent isol\u00e9es ou d\u00e9nigr\u00e9es. \u00ab Les personnes atteintes de maladies auto-immunes et chroniques sont tr\u00e8s dou\u00e9es pour sourire \u00bb, explique Megan. \u00ab Nous avons fait preuve de courage m\u00eame si nous n\u2019allions pas bien. \u00bb <\/span><\/p>\n

C\u2019est pourquoi la sensibilisation au lupus et \u00e0 l\u2019arthrite est importante, non seulement pour Megan, mais aussi pour les membres des deux communaut\u00e9s.<\/span><\/p>\n

Le Mois de la sensibilisation \u00e0 Arthtis est l\u2019occasion d\u2019aider \u00e0 \u00e9duquer les gens sur les signes et les sympt\u00f4mes de la maladie, partage Megan.<\/span><\/p>\n

\u00ab J\u2019esp\u00e8re qu\u2019en sensibilisant le public, nous pourrons contribuer \u00e0 r\u00e9duire le temps d\u2019attente de six ans avant que les gens ne soient correctement diagnostiqu\u00e9s \u00bb, dit-elle. \u00ab Ce mois-ci est \u00e9galement l\u2019occasion pour les gens de r\u00e9fl\u00e9chir au fait que les gens vivent avec des luttes invisibles dont leur entourage ne saurait rien \u00e0 premi\u00e8re vue. \u00bb <\/span><\/p>\n

Elle encourage \u00e9galement les personnes atteintes de lupus \u00e0 s\u2019impliquer dans le travail de plaidoyer et \u00e0 se connecter avec d\u2019autres par le biais de groupes de soutien et des m\u00e9dias sociaux.<\/span><\/p>\n

\u00ab Les maladies chroniques peuvent \u00eatre tr\u00e8s solitaires et isolantes \u00bb, dit-elle. \u00ab Communiquez avec des organismes comme Lupus Canada et la Soci\u00e9t\u00e9 de l\u2019arthrite pour trouver votre communaut\u00e9. \u00bb <\/span><\/span><\/p>\n

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Pour en savoir plus sur cette maladie auto-immune complexe, son lien avec l\u2019arthrite et pourquoi il est important de comprendre la diff\u00e9rence, <\/span>consultez notre article en collaboration avec la Soci\u00e9t\u00e9 de l\u2019arthrite.<\/span><\/p>\n

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Megan Friedman partage son exp\u00e9rience de vie avec le lupus et l\u2019arthrite. Son histoire met en lumi\u00e8re les d\u00e9fis, les id\u00e9es fausses et la n\u00e9cessit\u00e9 d\u2019une plus grande sensibilisation. <\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[92],"tags":[561,143,564,562,563],"topic":[118,120],"audience":[],"class_list":["post-10927","post","type-post","status-publish","format-standard","hentry","category-article-fr","tag-lupus-et-arthrite","tag-maladie-chronique","tag-maladie-invisible","tag-mois-de-la-sensibilisation-a-larthrite","tag-polyarthrite-rhumatoide","topic-recits-personnels","topic-sensibilisation-et-communaute-fr"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts\/10927","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/comments?post=10927"}],"version-history":[{"count":0,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/posts\/10927\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/media?parent=10927"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/categories?post=10927"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/tags?post=10927"},{"taxonomy":"topic","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/topic?post=10927"},{"taxonomy":"audience","embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/audience?post=10927"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}