{"id":10065,"date":"2025-04-15T16:30:51","date_gmt":"2025-04-15T16:30:51","guid":{"rendered":"https:\/\/www.lupuscanada.org\/traitement-du-lupus-et-acces-a-lensemble-des-provinces-repondez-au-sondage-aupres-des-patients\/"},"modified":"2025-04-29T00:39:42","modified_gmt":"2025-04-29T00:39:42","slug":"traitement-du-lupus-et-acces-a-lensemble-des-provinces-repondez-au-sondage-aupres-des-patients","status":"publish","type":"post","link":"https:\/\/www.lupuscanada.org\/fr\/traitement-du-lupus-et-acces-a-lensemble-des-provinces-repondez-au-sondage-aupres-des-patients\/","title":{"rendered":"Traitement du lupus et acc\u00e8s \u00e0 l\u2019ensemble des provinces : R\u00e9pondez au sondage aupr\u00e8s des patients"},"content":{"rendered":"

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Participez \u00e0 notre enqu\u00eate nationale sur l\u2019acc\u00e8s au traitement du lupus<\/h1>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2024\/08\/Custom-Gradient-1080×1080@2x.png\u00a0\u00bb custom_padding=\u00a0\u00bb10px||10px||true|false\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb20px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Joignez-vous \u00e0 nous dans notre mission d\u2019am\u00e9liorer l\u2019acc\u00e8s au traitement du lupus partout au Canada. Cette enqu\u00eate nationale vise \u00e0 comprendre les d\u00e9fis auxquels sont confront\u00e9s les patients atteints de lupus lorsqu\u2019ils d\u00e9m\u00e9nagent entre les provinces et les territoires. Vos pr\u00e9cieuses informations aideront \u00e0 fa\u00e7onner les politiques, \u00e0 am\u00e9liorer l\u2019acc\u00e8s aux soins de sant\u00e9 et \u00e0 assurer la continuit\u00e9 du traitement des patients atteints de lupus dans tout le pays. <\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb custom_margin=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_heading title=\u00a0\u00bbAm\u00e9liorer l\u2019acc\u00e8s aux soins de sant\u00e9\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_level=\u00a0\u00bbh3″ title_font=\u00a0\u00bbPermanent Marker||||||||\u00a0\u00bb title_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_heading][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Aidez-nous \u00e0 identifier les d\u00e9fis auxquels font face les patients atteints de lupus lorsqu\u2019ils d\u00e9m\u00e9nagent d\u2019une province \u00e0 l\u2019autre.<\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_heading title=\u00a0\u00bbContribuer au changement\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_level=\u00a0\u00bbh3″ title_font=\u00a0\u00bbPermanent Marker||||||||\u00a0\u00bb title_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_heading][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Vos commentaires influenceront directement les efforts de plaidoyer en faveur de meilleures options de traitement.<\/span><\/p>\n

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clinique et directrice de la Lupus Clinic of Northern Alberta, travaille \u00e0 am\u00e9liorer les soins du lupus au Canada.\u00a0\u00bb title_text=\u00a0\u00bbDre Stephanie Keeling – Directrice de la Clinique du lupus du Nord de l\u2019Alberta\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bb1cc6152f-565c-4c4d-b0c9-cf8c9576c341″ max_width=\u00a0\u00bb140px\u00a0\u00bb border_radii=\u00a0\u00bbon|100px|100px|100px|100px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3″ box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb112px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-24px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.12)\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_heading title=\u00a0\u00bbSt\u00e9phanie Keeling\u00a0\u00bb _builder_version=\u00a0\u00bb4.24.3″ _module_preset=\u00a0\u00bbba4a6336-701f-47b8-bf5c-09da0ce28016″ title_level=\u00a0\u00bbh3″ 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Stephanie Keeling est une chercheuse clinicienne de renom et professeure de m\u00e9decine \u00e0 l\u2019Universit\u00e9 de l\u2019Alberta. En tant que directrice de la Lupus Clinic of Northern Alberta, elle dirige des initiatives visant \u00e0 faire progresser les soins du lupus. Son travail avec le R\u00e9seau canadien pour l\u2019am\u00e9lioration des r\u00e9sultats dans le domaine du LED se concentre sur l\u2019\u00e9laboration de nouvelles recommandations pour le traitement du lupus au Canada. Stephanie se consacre \u00e0 l\u2019am\u00e9lioration de l\u2019acc\u00e8s aux m\u00e9dicaments pour les Canadiens atteints de maladies rhumatismales, en veillant \u00e0 ce que les soins de sant\u00e9 soient meilleurs pour tous. <\/p>\n

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Cette enqu\u00eate vise \u00e0 recueillir des informations sur les d\u00e9fis auxquels sont confront\u00e9s les patients atteints de lupus pour acc\u00e9der \u00e0 des soins rhumatologiques coh\u00e9rents lorsqu\u2019ils se d\u00e9placent entre les r\u00e9gions. Votre participation est enti\u00e8rement volontaire et vous pouvez vous retirer \u00e0 tout moment. Les donn\u00e9es recueillies seront anonymes et utilis\u00e9es pour plaider en faveur d\u2019un meilleur acc\u00e8s aux soins de sant\u00e9 et de nouvelles options de traitement pour les patients atteints de lupus partout au Canada. <\/p>\n

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Vos r\u00e9ponses nous aideront \u00e0 comprendre les obstacles syst\u00e9miques \u00e0 l\u2019acc\u00e8s aux soins de sant\u00e9 et contribueront \u00e0 des changements de politiques qui facilitent une meilleure continuit\u00e9 des traitements. En participant, vous jouez un r\u00f4le essentiel dans l\u2019\u00e9laboration de l\u2019avenir des soins du lupus. <\/p>\n

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Si vous souhaitez partager vos exp\u00e9riences personnelles plus en d\u00e9tail, veuillez fournir vos coordonn\u00e9es \u00e0 la fin du sondage. Ensemble, nous pouvons avoir un impact significatif sur la vie des personnes atteintes de lupus. <\/p>\n

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D\u00e9m\u00e9nager peut \u00eatre une t\u00e2che ardue pour n\u2019importe qui, mais pour les patients atteints de lupus, cela pr\u00e9sente des d\u00e9fis uniques. L\u2019acc\u00e8s aux soins de rhumatologie dans une nouvelle province ou un nouveau territoire implique souvent de naviguer entre diff\u00e9rents syst\u00e8mes de soins de sant\u00e9, ce qui peut entra\u00eener des retards dans le traitement. Les patients peuvent rencontrer des difficult\u00e9s pour transf\u00e9rer les dossiers m\u00e9dicaux, trouver de nouveaux sp\u00e9cialistes et assurer la continuit\u00e9 des m\u00e9dicaments. Ces obstacles peuvent avoir un impact significatif sur leur sant\u00e9 et leur qualit\u00e9 de vie. <\/span><\/p>\n

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Il est essentiel pour les patients atteints de lupus qui d\u00e9m\u00e9nagent d\u2019avoir un acc\u00e8s sans faille aux soins de sant\u00e9. La variabilit\u00e9 des services de sant\u00e9 entre les provinces peut cr\u00e9er des obstacles, ce qui fait en sorte qu\u2019il est difficile pour les patients de recevoir des soins uniformes. Cette enqu\u00eate vise \u00e0 recueillir des informations sur ces d\u00e9fis afin d\u2019\u00e9clairer les changements de politiques et d\u2019am\u00e9liorer la prestation des soins de sant\u00e9 aux patients atteints de lupus \u00e0 l\u2019\u00e9chelle nationale. <\/span><\/p>\n

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Joignez-vous \u00e0 nous dans notre mission d\u2019am\u00e9liorer l\u2019acc\u00e8s aux soins de sant\u00e9 pour les patients atteints de lupus partout au Canada. En participant \u00e0 ce sondage, vous contribuez \u00e0 une meilleure compr\u00e9hension des d\u00e9fis auxquels sont confront\u00e9es les personnes atteintes de lupus. Votre contribution est cruciale pour susciter le changement et am\u00e9liorer la vie de nombreuses personnes. Prenez quelques minutes pour partager vos exp\u00e9riences et nous aider \u00e0 avoir un impact durable. <\/p>\n

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