{"id":12553,"date":"2026-05-09T19:14:30","date_gmt":"2026-05-09T19:14:30","guid":{"rendered":"https:\/\/www.lupuscanada.org\/lupus-et-maternite-lhistoire-de-diana-lupus-canada\/"},"modified":"2026-05-19T20:11:38","modified_gmt":"2026-05-19T20:11:38","slug":"lupus-et-maternite-lhistoire-de-diana-lupus-canada","status":"publish","type":"page","link":"https:\/\/www.lupuscanada.org\/fr\/lupus-et-maternite-lhistoire-de-diana-lupus-canada\/","title":{"rendered":"Lupus et maternit\u00e9| L\u2019histoire de Diana | Lupus Canada"},"content":{"rendered":"

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Comment le lupus a chang\u00e9 la maternit\u00e9<\/span><\/h1>\n

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Le lupus et la maternit\u00e9 sont au c\u0153ur de l\u2019histoire de Diana \u2014 une r\u00e9flexion puissante sur la r\u00e9silience, le deuil, l\u2019espoir et la vie avec le lupus depuis plus de 30 ans.<\/span><\/p>\n

Cette f\u00eate des m\u00e8res et Journ\u00e9e mondiale du lupus, Lupus Canada partage le parcours de Diana \u00e0 travers des d\u00e9fis sanitaires inimaginables, des chagrins, des incertitudes et, en fin de compte, de l\u2019espoir. Son histoire rappelle que le lupus affecte bien plus que la sant\u00e9 physique. Cela impacte les familles, l\u2019avenir, les relations, la sant\u00e9 mentale et les moments dont les gens r\u00eavent bien avant le diagnostic. <\/span><\/p>\n

Dans le cadre du Mois de sensibilisation au lupus au Canada, nous continuons \u00e0 partager des histoires qui contribuent \u00e0 rendre le lupus plus visible tout en favorisant une meilleure compr\u00e9hension, plaidoyer et soutien pour les personnes vivant avec le lupus.<\/span><\/p>\n

Parce que les personnes vivant avec le lupus m\u00e9ritent mieux.<\/span><\/p>\n

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Une vie fa\u00e7onn\u00e9e par le lupus, d\u00e9finie par la r\u00e9silience<\/span><\/h2>\n

\u00ab Je m\u2019appelle Diana Bozzo. Je vis avec le lupus depuis plus de 30 ans, et aujourd\u2019hui je consacre une grande partie de ma vie \u00e0 d\u00e9fendre les personnes touch\u00e9es par cette maladie complexe et souvent mal comprise. Gr\u00e2ce \u00e0 la sensibilisation du public et \u00e0 la d\u00e9fense des patients, j\u2019esp\u00e8re que personne vivant avec le lupus ne se sente jamais invisible ou seul. \u00bb<\/span><\/p>\n

Le parcours de Diana pour le lupus a commenc\u00e9 \u00e0 seulement 15 ans, lorsqu\u2019elle a d\u00e9velopp\u00e9 un trouble sanguin rare et mortel appel\u00e9 purpura thrombotique thrombocytop\u00e9nique (TTP). Deux ans plus tard, \u00e0 17 ans, elle re\u00e7ut le diagnostic qui allait changer le cours de sa vie : lupus \u00e9ryth\u00e9mateux syst\u00e9mique<\/a>. <\/span><\/p>\n

Au fil des ann\u00e9es, le lupus a entra\u00een\u00e9 des complications physiques d\u00e9vastatrices, notamment des caillots sanguins, des embolies pulmonaires, la maladie de Raynaud<\/a>, une crise isch\u00e9mique transitoire et des pouss\u00e9es r\u00e9p\u00e9t\u00e9es mettant sa vie en danger de vie qui l\u2019ont laiss\u00e9e physiquement affaiblie et \u00e9puis\u00e9e \u00e9motionnellement.<\/span><\/p>\n

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\u00ab Il y a eu des moments, trop nombreux pour les compter, o\u00f9 je ne savais vraiment pas si je survivrais. \u00bb<\/span><\/h5>\n

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Mais au-del\u00e0 des d\u00e9fis m\u00e9dicaux, le lupus a aussi pris des morceaux du futur que Diana avait autrefois imagin\u00e9 pour elle-m\u00eame.<\/span><\/p>\n

L\u2019un des plus grands chagrins est survenu lorsqu\u2019elle et son mari ont d\u00e9cid\u00e9 qu\u2019ils \u00e9taient pr\u00eats \u00e0 fonder une famille.<\/span><\/p>\n

Apr\u00e8s de nombreux examens m\u00e9dicaux, les m\u00e9decins de Diana expliqu\u00e8rent qu\u2019une grossesse mettrait sa vie en danger extr\u00eame.<\/span><\/p>\n

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\u00ab Si je devenais gravement malade pendant ma grossesse, mon mari pourrait \u00eatre confront\u00e9 \u00e0 une d\u00e9cision impossible, que ce soit pour sauver ma vie ou celle de notre b\u00e9b\u00e9. \u00bb<\/span><\/h5>\n

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\u00ab \u00c0 cet instant, le r\u00eave que j\u2019avais si fort m\u2019a gliss\u00e9 entre les mains. Une fois de plus, le lupus m\u2019a pris quelque chose de profond\u00e9ment pr\u00e9cieux. \u00bb<\/span><\/p>\n

Diana sombra dans une profonde d\u00e9pression et peinait \u00e0 imaginer une autre voie \u00e0 suivre.<\/span><\/p>\n

Puis, de fa\u00e7on inattendue, l\u2019espoir est apparu par gestation pour autrui.<\/span><\/p>\n

Bien que la FIV ait d\u00e9clench\u00e9 une grave pouss\u00e9e de lupus et renforc\u00e9 les dangers que la grossesse posait pour sa sant\u00e9, Diana et son mari ont continu\u00e9 avec d\u00e9termination et foi.<\/span><\/p>\n

De deux embryons sont n\u00e9s deux miracles : les filles jumelles, Ashley et Melissa.<\/span><\/p>\n

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\u00ab Ils sont ma lumi\u00e8re, mon but, et le plus grand cadeau que la vie m\u2019ait jamais fait. \u00bb<\/span><\/h5>\n

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Aujourd\u2019hui, Diana continue d\u2019utiliser sa voix pour plaider en faveur d\u2019une plus grande sensibilisation, recherche, \u00e9ducation et soutien aux personnes vivant avec le lupus \u00e0 travers le Canada.<\/span><\/p>\n

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\u00ab Le lupus peut fa\u00e7onner notre chemin, mais il ne d\u00e9finit pas qui nous sommes.<\/h5>\n
J\u2019ai le lupus. Mais le lupus ne m\u2019a pas. \u00bb<\/h5>\n

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Par le plaidoyer et le r\u00e9cit, Diana esp\u00e8re que davantage de Canadiens comprendront mieux la r\u00e9alit\u00e9 du lupus et l\u2019impact qu\u2019il peut avoir sur les individus et les familles confront\u00e9s \u00e0 des maladies chroniques.<\/span><\/p>\n

[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/fr\/mois-de-la-sensibilisation-au-lupus-2025\/\u00a0\u00bb button_text=\u00a0\u00bbD\u00e9couvrez le Mois de la sensibilisation au lupus\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb0px||31px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2024\/05\/Diana-Bozzo.jpg\u00a0\u00bb alt=\u00a0\u00bbElliot Saucier courant le long d\u2019un sentier forestier dans le cadre de son d\u00e9fi de sensibilisation au lupus de 230 km\u00a0\u00bb title_text=\u00a0\u00bbDiana-Bozzo\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb width=\u00a0\u00bb76%\u00a0\u00bb width_tablet=\u00a0\u00bb46%\u00a0\u00bb width_phone=\u00a0\u00bb68%\u00a0\u00bb width_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb54px||54px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_cta title=\u00a0\u00bbLisez l\u2019histoire compl\u00e8te de Diana sur le lupus\u00a0\u00bb button_url=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/fr\/lhistoire-de-mon-lupus-diana-b\/\u00a0\u00bb button_text=\u00a0\u00bbLisez l\u2019histoire compl\u00e8te de Diana\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bb4c2ad5d0-871e-414e-a4be-aa9134d4ae8e\u00a0\u00bb header_font=\u00a0\u00bb–et_global_heading_font|Permanent Marker_weight|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#3E005C\u00a0\u00bb header_font_size=\u00a0\u00bb40px\u00a0\u00bb header_line_height=\u00a0\u00bb1.2em\u00a0\u00bb body_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb body_text_color=\u00a0\u00bb#6B198A\u00a0\u00bb body_font_size=\u00a0\u00bb19px\u00a0\u00bb body_line_height=\u00a0\u00bb1.75em\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb14px\u00a0\u00bb button_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb button_bg_color=\u00a0\u00bb#6B198A\u00a0\u00bb 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Diana a auparavant partag\u00e9 une r\u00e9flexion plus approfondie sur son parcours lupus, incluant son diagnostic pr\u00e9coce, ses difficult\u00e9s m\u00e9dicales, son travail de plaidoyer et ses exp\u00e9riences de vie avec le lupus.<\/span><\/p>\n

[\/et_pb_cta][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ admin_label=\u00a0\u00bbCall to Action\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/wp-content\/uploads\/2024\/03\/meetup-banner.png\u00a0\u00bb custom_margin=\u00a0\u00bb30px||30px||true|false\u00a0\u00bb custom_padding=\u00a0\u00bb5vw||5vw||true|false\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb saved_tabs=\u00a0\u00bball\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb collapsed=\u00a0\u00bbon\u00a0\u00bb global_colors_info=\u00a0\u00bb{%22gcid-36fd78a7-34bc-404d-873c-dafa34efaae5%22:%91%22background_color%22%93}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.18.0″ _module_preset=\u00a0\u00bb5138c454-be54-4233-bd3b-f8e6a8747976″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.18.0″ _module_preset=\u00a0\u00bb73121f80-a3ef-4484-8763-c3f18e3c56d2″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_cta title=\u00a0\u00bbSoutenez les Canadiens vivant avec le lupus\u00a0\u00bb button_url=\u00a0\u00bbhttps:\/\/www.lupuscanada.org\/fr\/mois-de-la-sensibilisation-au-lupus-2025\/\u00a0\u00bb button_text=\u00a0\u00bbImpliquez-vous\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bb4c2ad5d0-871e-414e-a4be-aa9134d4ae8e\u00a0\u00bb header_font=\u00a0\u00bb–et_global_heading_font|Permanent Marker_weight|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#3E005C\u00a0\u00bb header_font_size=\u00a0\u00bb40px\u00a0\u00bb header_line_height=\u00a0\u00bb1.2em\u00a0\u00bb body_font=\u00a0\u00bbNoto Sans||||||||\u00a0\u00bb body_text_color=\u00a0\u00bb#6B198A\u00a0\u00bb body_font_size=\u00a0\u00bb22px\u00a0\u00bb body_line_height=\u00a0\u00bb1.75em\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb14px\u00a0\u00bb button_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb button_bg_color=\u00a0\u00bb#6B198A\u00a0\u00bb button_border_width=\u00a0\u00bb0px\u00a0\u00bb button_border_radius=\u00a0\u00bb100px\u00a0\u00bb button_font=\u00a0\u00bbNoto Sans|700|||||||\u00a0\u00bb button_on_hover=\u00a0\u00bboff\u00a0\u00bb button_custom_padding=\u00a0\u00bb12px|24px|12px|24px|true|true\u00a0\u00bb background_layout=\u00a0\u00bblight\u00a0\u00bb custom_margin=\u00a0\u00bb-18px||-18px||true|false\u00a0\u00bb custom_margin_tablet=\u00a0\u00bb\u00a0\u00bb custom_margin_phone=\u00a0\u00bb44px|20px|44px|20px|true|true\u00a0\u00bb custom_margin_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb custom_padding=\u00a0\u00bb55px|170px|55px|170px|true|true\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb30px|30px|30px|30px|true|true\u00a0\u00bb custom_padding_phone=\u00a0\u00bb33px|19px|33px|19px|true|true\u00a0\u00bb custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ header_font_size_tablet=\u00a0\u00bb28px\u00a0\u00bb header_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb body_font_size_tablet=\u00a0\u00bb16px\u00a0\u00bb body_font_size_phone=\u00a0\u00bb14px\u00a0\u00bb body_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb border_radii=\u00a0\u00bbon|6px|6px|6px|6px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3″ box_shadow_vertical=\u00a0\u00bb24px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb72px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-12px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.12)\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{%22gcid-f2943306-fa6c-45f0-b632-5fc00151366a%22:%91%22button_text_color%22%93,%22gcid-36fd78a7-34bc-404d-873c-dafa34efaae5%22:%91%22button_text_color%22,%22color%22,%22background_color%22%93,%22gcid-7cadd8b3-5228-48e4-90c4-212d09232f7b%22:%91%22color%22,%22color%22,%22color%22,%22color%22%93,%22gcid-f113ad93-2527-46d7-862b-fc71181c6b5e%22:%91%22border_color_all%22,%22border_color_all%22%93}\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb16px\u00a0\u00bb text_font_size_phone=\u00a0\u00bb14px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″]<\/p>\n

En ce Mois de la Sensibilisation au Lupus, vous pouvez aider \u00e0 le rendre visible.<\/p>\n

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Le lupus et la maternit\u00e9 sont profond\u00e9ment li\u00e9s dans l\u2019histoire \u00e9motionnelle de Diana faite de r\u00e9silience, de maladie chronique, de gestation pour autrui et d\u2019espoir apr\u00e8s des d\u00e9cennies de vie avec le lupus.<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-12553","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/pages\/12553","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/comments?post=12553"}],"version-history":[{"count":0,"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/pages\/12553\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.lupuscanada.org\/fr\/wp-json\/wp\/v2\/media?parent=12553"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}