My Lupus Story

/My Lupus Story
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My Lupus Story by Cassandra Pass

My name is Cassandra, and I’m a 28 year old woman, who has been diagnosed with lupus since I was 21. It’s been 7 years of daily struggle.

I’d like to say I’ll start at the beginning, but for me, that’s not that easy.

I lost a chunk of my memory due to Lupus Cerebritis, with which […]

October 1st, 2017|Lupus Stories, My Lupus Story|0 Comments

My Lupus Story by Sue-San King

I wish to share my lupus story during this time of grieving for the recent loss of my beloved uncle, Mr. Clair Goodwin. He passed on May 16, 2017.

I wrote him a letter while he was in hospital, detailing my journey with lupus that he was not aware of. It was written to encourage him […]

July 1st, 2017|My Lupus Story|0 Comments

My Lupus Journey by Kerry Johnson

Having lived with SLE for 45 years, lupus is a huge part of me; but I have made a conscious effort to not let it define who I am. Diagnosed in 1973 in my early teens, a life with lupus is really all I know. Certainly, it affected my plans as to where […]

May 1st, 2017|My Lupus Story|1 Comment

My Lupus Story by Jalesa Martin

At the age of 14, doctors confirmed that I had an auto-immune disease called Lupus. After hearing this sentence, I thought my life was over. Little did I know, that living with Lupus would have such a positive impact on my life today and allow me to experience endless opportunities.

Throughout this journey, Lupus has been […]

April 3rd, 2017|My Lupus Story|12 Comments

My Lupus Story by Nancy Le

My Lupus Story
by Nancy Le

My name is Nancy and I am 33 years old. Like many with lupus it was not an easy diagnosis. My initial symptoms included joint pain and fatigue which my doctors accredited to my lifestyle of competitive dancing. Then I had hair loss, extreme mouth sores and a red scaly skin […]

September 1st, 2016|My Lupus Story|3 Comments

My Lupus Story by Christine Harrietha

This is for everyone living with lupus – whether you were diagnosed fourteen years ago, today or you find out tomorrow. This is for everyone who feels like it won’t get better. This is for everyone who feels like lupus controls his or her life. And this is my story.

Lupus at thirteen years old was […]

June 1st, 2016|My Lupus Story|1 Comment

My Lupus Story by Linda Wilkins-Parker

When I was diagnosed with Lupus 25 years ago, I had no idea how many effects it could have on my body. My RA and ANA blood tests came back positive. I had joint pain and that was it at the time.

As the pain worsened in my hips and knees, I had […]

May 1st, 2016|My Lupus Story|0 Comments

My Lupus Story by Brian Y

My name is Brian I am 63 years old ,Although I was diagnosed with Lupus 2 ½ years ago , I feel I have had it since I was around 55. Back then I had rashes and hives that would keep reoccurring , my skin was extremely itchy especially my stomach and back , my […]

February 1st, 2016|My Lupus Story|3 Comments

My Lupus Story

My Lupus Story by Sandy Carveth

Lupus began for me as a child, but it was devious enough that no one suspected the diagnosis until I was 49!

My first symptoms began with complex partial seizures as my autoimmune attacks my CNS the most. I wasn’t diagnosed with seizures until I was 18 or 19. I had […]

January 1st, 2016|My Lupus Story|0 Comments

My Lupus Story

My Lupus Story by – Brenda Shelton

My name is Brenda, I am 50 years old. I am married with two awesome boys, and I have
LUPUS! My first child had to be delivered early because of my lupus. He was born at 29 weeks and weighed only 2lbs (1400grams). He did fantastic because of the […]

December 1st, 2015|My Lupus Story|3 Comments