Lupus affects so many people, patients and their families. With lupus so much of what you go through is mysterious and invisible. There is no simple diagnostic test and the symptoms are different for everyone. After being diagnosed in 2009 with discoid lupus and SLE in 2010 like many who share this baffling and complex condition I had a hard time saying no especially as a Mom. “No” had to become the norm for me. However, there is hope. After getting my medications on track I decided I wanted to give back to the community that was there for me leading up to, during and after my diagnosis.
For over 25 years, Lupus Canada has been working with other lupus organizations, including its member organizations to improve the lives of people living with lupus, like myself, through public awareness, research, education and advocacy.
I hope you find our website to be an informative resource. Links to local organizations will help you to learn more about initiatives and events in your community. The staff of Lupus Canada under the direction of Leanne Mielczarek, Executive Director and a dedicated group of volunteers work tirelessly to gather and develop valuable information on our website for people affected by lupus.
Please join me in transforming the diagnosis and experience of living with lupus into a positive force to increase awareness and improve the quality of life for other patients.