You are not alone

Lupus is not always a visible disease. The pain often goes unnoticed, unrecognized or unappreciated. On days when few people seem to understand what you are going through, feelings of loneliness, frustration, or even depression may creep up. Remember that you are not alone and there are people that want to support you in your life with Lupus.

Join an online community

Joining a Facebook group or an online forum can connect you with people living with Lupus around the world and allow you to speak with others that “get it” almost instantaneously. There is a community of people who have experience the same pain, joy, fatigue and loneliness as you. There is also the added benefit of being able to communicate from the comfort of your own bed!

Visit a local clinic or support group

Lupus organizations come in all shapes and sizes throughout the country. Foundations, clinics and community support groups are there to help you through your Lupus. Here is a link to a list of provincial organizations. Each provincial organization has a list of municipal clinics. Contact your local member organization for support groups and information.

Talk to family and friends

Talk openly and honestly about your chronic illness to your family and loved ones. Don’t avoid talking about Lupus and try your best to share how you feel. Often, it can be more difficult to speak candidly to your closest friends and family. Push through that uncertainty because they only want to support you.